Science didn’t understand my kids’ rare disease until I decided to study it – YouTube
via Kevin Lyda: ‘Sharon Terry essentially invented and promoted something akin to the GPL but for medical research. Here’s a bunch of data and research and you can use it if you contribute back what you discover to everyone else.’
(tags: sharon-terry videos ted-talks genetic-alliance genes pxe-international pxe tedmed citizen-science licensing gpl gnu)
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Oh man, this is awful. Poor guy. And this should have been there right from the start:
The moderator said that when he started, he was given just two weeks training and was required to use his personal Facebook account to log into the social media giant’s moderation system. “They should have let us use fake profiles,” he said, adding: “They never warned us that something like this could happen.” Facebook told the Guardian that as a result of the leak it is testing the use of administrative accounts that are not linked to personal profiles.
(tags: facebook security counter-terrorism moderation social-media role-accounts admin)