With an Aussie perspective — Dr. Hyde works in Perth. ‘Summary: further evidence children & adults are equally susceptible & equally likely to transmit; school clusters are increasing; precautions needed in schools.’
Genuity Science, the main company involved in DNA sequencing in Ireland, has at least 25 links to facilities around Ireland. These include funding and collaborations with major hospitals, universities, research facilities and charities. A collaboration agreement signed between Genuity Science and UCD is “restrictive”, according to an academic expert, though Genuity Science Ireland disagree with this assessment. We have the full details in this breakout article. Hospital clinicians have become “agents of a company” due to the nature of agreements in place, according to experts. Researchers are making “the best of the situation” in Ireland by working with the private sector but most would prefer a public system due to data access concerns. Lack of Government policy and adequate regulation means that private companies have no limit on how long they have exclusive access to the data they collect from Irish patients. Researchers and patient representatives are concerned about a potential erosion of trust in genetics research in Ireland.